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Old 05-08-2014, 12:27 PM   #1
Fartacus
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Default Meniere's Disease

Mrs. F was recently diagnosed with Meniere's Disease.

She's been given some vertigo medicine, which she's trying not to use, and some exercises to do.

Anyone have any suggestions on how else to treat this?
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Old 05-08-2014, 12:44 PM   #2
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She might have her dentist do a thorough exam and look for an underlying tooth problem. My mom had an ENT problem that evaded all kinds of treatments for a couple of years and it turned out to be a tooth!

Something else worth trying is to find a massage therapist who is certified in Cranial Sacral work and give a few sessions a try. http://www.upledger.com/findapractitioner.asp
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Old 05-08-2014, 12:44 PM   #3
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Epley's Maneuver has been used in some cases of Meniere's. You should do some research on it before deciding if it could be useful to her.
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Old 05-08-2014, 05:54 PM   #4
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I get vertigo for a few different reasons but it seems to mostly be from certain visual things.

Don't have any ideas for treating that but possibly yoga or other exercise that will help core strength/balance?
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Old 05-08-2014, 06:09 PM   #5
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I have been diagnosed with it too. It can be really nasty. I have found anti-inflammatories work well for me to control the vertigo. Natural ones help too: ginger, red wine, berries, dark chocolate. I have lost most of my inner ear balance now, (or what signals register from my ears is too wonky to depend on, so I ignore it.) I balance by sight now more than feel. Which means that if I close my eyes, I will fall over! Exercises to strengthen my core and my ankles have been helpful. I find that my attacks are much shorter now than they were at the onset, so I don't stay dizzy for as long.

I have some hearing acuity loss that comes and goes. I try to be very forthright announcing my bad hearing days to those around me when it occurs. Most people are understanding about it. Since I can lipread, I ask people to face me when they are talking to me. On bad days I use text or email to communicate at work rather than the phone.
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Old 05-09-2014, 01:01 AM   #6
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How much worse is that than BPPV???
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Old 05-11-2014, 01:26 AM   #7
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Mom had it. Somedays she would just start walking sideways for a bit. After she started taking her meds it got a lot better.
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Old 05-11-2014, 03:46 PM   #8
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Quote:
Originally Posted by Fartacus View Post
Mrs. F was recently diagnosed with Meniere's Disease.

She's been given some vertigo medicine, which she's trying not to use, and some exercises to do.

Anyone have any suggestions on how else to treat this?
Yeah, had to look it up, -->what I read.. Also that the most common vertigo medicines are likely one of many antihistamines that are also available OTC, mecilizine was first on that list. And Since allergies can be one of the causes of (Idiopathic Endolymphatic Hydrops). Is Mrs F also experiencing allergies? And which Drug did her Doc prescribe?

Said, when meds can't control the vertigo then surgery is an option. So What her reasons for not wanting to try the rx?

~

Last edited by Sonny; 05-11-2014 at 09:53 PM. Reason: than -> then
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Old 05-12-2014, 10:32 AM   #9
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Antivert (Melclozine) is what they prescribed. She's trying only to take it in extreme situations at work that might hamper her teaching. She has never been big on Rx meds. She prefers to try to handle things naturally whenever possible.

They told her she had to totally give up caffeine, chocolate, and salt. Since she was already a vegetarian and gluten free (celiac disease), her options are getting more and more limited.

She finds that ginger and peppermint are helping.

Someone I work with who has symptoms of Meniere's because of a concussion recommended lemon, lavender, and peppermint oils behind the ears. She said that helped a lot.
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Old 05-12-2014, 01:43 PM   #10
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Farticus, I think it's always best to first 'test' all meds at home before using at work to learn how it will effect you.. So you know what to expect..

Antivert [Mecilizine] is available OTC in 12.5mg, 25mg, and 50mg. tabs. $4.00 per 100.. I like pills that are small in size and that will dissolve under the tongue if needed in an emergency.. Maybe Mrs F would feel less hesitant if they were not in a prescription bottle, ie, not a drug.. I don't know if that's an issue?




~~~~~~~~~~~~~

Good article, the most detailed one I've read. Don't feel compelled to donate,
http://vestibular.org/menieres-disease

There's a lot of info on this page, almost too much. I don't know if you'd want Mrs. F to read it as it's written with an almost worst case perspective.
But I did want you to see the last pdf article, below.. I though it interesting that the vertigo meds diminish the benefits from doing the balance exercises as they block the signals from the inner ear to the brain. huh!



Further reading
Some helpful documents available from the Vestibular Disorders Association include the following:

~

Last edited by Sonny; 05-12-2014 at 01:54 PM.
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Old 05-13-2014, 02:59 AM   #11
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Sorry to hear about Ms. F - I have it also. I was also told to avoid Caffeine - I've switched to mint tea.
My Dr.s first suggestion was diuretics, but since I have problems with dehydration due to limitations on ability to absorb water, we ditched that idea. He has me taking 2mg of diazepam per day, routinely, with 2 or three more if I have an attack.
Any kind of stress, but particularly not getting enough sleep seems to be a big cause of problems.

I have had rather severe loss of hearing in my right ear. Tests say the left ear is 'normal for my age', but It seems to me, at least sometimes, that it too, is quite a bit less sensitive.
Being 'one eared' I've lost all directional sense, and suffer badly from "cocktail party" effect - until you have it you don't realize how good our two ears & sonic processing brain functions are at sorting out one voice from many!
Spinner & I went to a new restaurant recently - turned out it was a college hangout in a bare, flat roofed hanger of a place; terrible acoustics!! Probably ~200 customers, all babbling away full blast. The food was good, but the "ambience" was torture! I had to put my good ear right at Spin's mouth to hear what she said. Constant noise loud enough to cause intermodulation distortion in my ears! Even with two good ears I don't know how the kids stand it!

It's been a while since I've had a real 'attack' - for me that means vertigo, increasing over an hour or two, until I get nauseous - then projectile vomiting, sometimes with dry heaves after a time or two. Finally just laying down with my eyes closed and eventually sleeping it off.
During the run up, I would have increased dizziness if I tried to use both eyes, so closing one would help a bit. Probably my eyes were not tracking well - causing more confusing signals to my brain.

My Dr.s explanation to me was that the two middle ears usually send similar signals to the brains balance center. The labyrinths are made up of many small cells, or pockets filled with different concentrations of different electrolytes. When a cell gets too full, the membrane between adjacent cells ruptures, suddenly mixing the different electrolytes and sending abnormal signals to the brain, which is confused by the differing signals from the two middle ears, causing dizziness. Diuretics are supposed to control the pressure in the cells, preventing rupturing.

I sincerely hope Ms. F has good success at controlling her symptoms!
My best to you both!

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Old 05-17-2014, 02:42 AM   #12
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Valuable or not..,

http://www.menieresdiseasestudy.com/53.htm
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